Sometimes I have to wonder if God had worked things out for my family before all this happened to me. We had moved from our home in Indianapolis to where we live now in 93. When we chose to move we had a terrible time selling our home so we chose to rent the home in Indianapolis instead until we could find a buyer. When we rented the home out we only rented to those that showed a desire to maybe some day purchasing the home from us. We ended up renting it from 1993 to June of 1999. The worse part about having the rental was the upkeep on it because the home was 45 miles away from us. It was difficult to keep maintained the way it should have been. I do feel like God had a hand in getting rid of our home. We were on our 3rd renters and felt pretty sure they would purchase the home. It took them 6 months to get all there finances together to purchase the house. We had waited so long for the deal to get finished we felt it probably was not going to happen. The same week we were to finalized our home deal we were in hot pursuit of getting our new home refinanced to save our selves some money. We ended up selling our rental the first week in June and then the refinancing on our home went through the same week as well. It took us another week to finalized the refinancing deal. My MS hit in early July. We would have had a really tough time taking care of the rental with the troubles I went through with my MS. The combination of a profit from the home sell and refinancing gave us enough money to get through what could have been a very difficult financial time for my family. That never happened.
Tuesday, January 18, 2005
Oh no Multiple Sclerosis now!
It seems like it should be impossible for me to have both Diabetes and Multiple Sclerosis. Diabetes is a disease that usually runs in a family and I don't know of any one in my family that has it. My grandparents recently passed away and all three were in there 90's and were healthy most of there lives. My Grandmother Tyson died this past May 2001. MS and Diabetes are diseases that treat each person differently.
This August was in ways an anniversary for me. In August of 1999 I was diagnosed with my Multiple Sclerosis. It was a total surprise to me. I was in pretty good condition other than my type 1 diabetes since April 1993. In July of 1999 I was having some troubles with my left leg being on the weak side. I hade gone to see my Neurologist about my condition. I was told I had Neuropathy in my legs being caused by my diabetes. My regular family doctor had me go through a series of different tests because I had told her I thought maybe something other than my diabetes was happening. As I was getting worse I had another visit with my Neurologist and I told him a few troubles I was having one being that I was having trouble with my short term memory. He decided to have me do an MRI test to see what was going on. It turned out I had grey matter on my brain. I had no idea what that meant. I was told it could be a number of medical conditions. (my doctors photo) My Neurologist speculated possibly MS but said a spinal tap would be needed to be sure of what it was. I was concerned about what he would find but I was also worried about how that needle in my spine would feel. My Neurologist did a great job and caused no pain. By the time I had my spinal tap which was early August I was already using a walker or wheelchair because a lack of Balance. My Neurologist found that I had Multiple Sclerosis. I was hoping that it was a treatable disease like Limes Disease which is caused by a tick. By Mid August I had to take short term disability from my work because of having to miss so many days. It then turned into long term disability and then I am now on Social Security. All I can say is thank God for disability insurance because it has really saved my family financially.
I spent the good part of my short term disability hoping for remission which can happen and does to many with MS. Guess what after 2 years I am still waiting and hoping. I would have to say after taking my shot for my MS and two more for my Diabetes I believe I know how a porcupine must feel.
I would have to say my first year with my MS was the roughest it is so hard to change the way you are so use to doing things in life. I am 39 and am not ready for an early retirement which makes being disabled so hard. I miss being able to walk around the block or just fun doing things like fishing, hiking and yes even mowing the yard, especially outside work. I have two sons 11 and 4 and I miss being able to play ball or take them to the park to run around. I have a great wife her name is Judy and she is not only my wife but also my best friend. She has done a terrific job helping me get through this, she is even taking on new learning skills like Plumbing, Carpentry, Electrical work, Painter, but mainly there to help out with everything. She is great with the boys and does a great job with all chores all wives take care of. I know I would be at a complete lost with out her. My two sons are also very good to help out. My 11 year old has had to grow up sooner than I wanted him to he has learned to do things I did around the home. He is great at mowing, he also help with Jacob my 4 year old when he needs help and does well to give his mother a hand also.
do feel lucky that I am still able to walk using my walker or wheelchair. I was able to get hand controls put on my truck and so I am still capable of driving when needed.
I was an electronic tech for many years and since becoming disabled have turned doing my web pages as a hobby. When I made my web page I did it because I needed a better way to deal with my MS. My reason for making this web page was after meeting people at Jooly's a MS web page in the UK where people go to get information about MS but to also meet others with MS. Where you can email others with MS to see how they deal with this disease. When I sent out my first email to get on there message board I had several email me with there web pages my web page is located a Jooly's also, about there MS. I liked getting the web pages along with the contact email and decided I could easily come up with my own web page to meet others also. While I was healthy I had put together some nice equipment for my computer and now I have enjoyed making use of it to put my web page together. I have made my web page interactive so that other's with MS or Diabetes or even other disabilities can add there information to my web page for others to enjoy.
This August was in ways an anniversary for me. In August of 1999 I was diagnosed with my Multiple Sclerosis. It was a total surprise to me. I was in pretty good condition other than my type 1 diabetes since April 1993. In July of 1999 I was having some troubles with my left leg being on the weak side. I hade gone to see my Neurologist about my condition. I was told I had Neuropathy in my legs being caused by my diabetes. My regular family doctor had me go through a series of different tests because I had told her I thought maybe something other than my diabetes was happening. As I was getting worse I had another visit with my Neurologist and I told him a few troubles I was having one being that I was having trouble with my short term memory. He decided to have me do an MRI test to see what was going on. It turned out I had grey matter on my brain. I had no idea what that meant. I was told it could be a number of medical conditions. (my doctors photo) My Neurologist speculated possibly MS but said a spinal tap would be needed to be sure of what it was. I was concerned about what he would find but I was also worried about how that needle in my spine would feel. My Neurologist did a great job and caused no pain. By the time I had my spinal tap which was early August I was already using a walker or wheelchair because a lack of Balance. My Neurologist found that I had Multiple Sclerosis. I was hoping that it was a treatable disease like Limes Disease which is caused by a tick. By Mid August I had to take short term disability from my work because of having to miss so many days. It then turned into long term disability and then I am now on Social Security. All I can say is thank God for disability insurance because it has really saved my family financially.
I spent the good part of my short term disability hoping for remission which can happen and does to many with MS. Guess what after 2 years I am still waiting and hoping. I would have to say after taking my shot for my MS and two more for my Diabetes I believe I know how a porcupine must feel.
I would have to say my first year with my MS was the roughest it is so hard to change the way you are so use to doing things in life. I am 39 and am not ready for an early retirement which makes being disabled so hard. I miss being able to walk around the block or just fun doing things like fishing, hiking and yes even mowing the yard, especially outside work. I have two sons 11 and 4 and I miss being able to play ball or take them to the park to run around. I have a great wife her name is Judy and she is not only my wife but also my best friend. She has done a terrific job helping me get through this, she is even taking on new learning skills like Plumbing, Carpentry, Electrical work, Painter, but mainly there to help out with everything. She is great with the boys and does a great job with all chores all wives take care of. I know I would be at a complete lost with out her. My two sons are also very good to help out. My 11 year old has had to grow up sooner than I wanted him to he has learned to do things I did around the home. He is great at mowing, he also help with Jacob my 4 year old when he needs help and does well to give his mother a hand also.
do feel lucky that I am still able to walk using my walker or wheelchair. I was able to get hand controls put on my truck and so I am still capable of driving when needed.
I was an electronic tech for many years and since becoming disabled have turned doing my web pages as a hobby. When I made my web page I did it because I needed a better way to deal with my MS. My reason for making this web page was after meeting people at Jooly's a MS web page in the UK where people go to get information about MS but to also meet others with MS. Where you can email others with MS to see how they deal with this disease. When I sent out my first email to get on there message board I had several email me with there web pages my web page is located a Jooly's also, about there MS. I liked getting the web pages along with the contact email and decided I could easily come up with my own web page to meet others also. While I was healthy I had put together some nice equipment for my computer and now I have enjoyed making use of it to put my web page together. I have made my web page interactive so that other's with MS or Diabetes or even other disabilities can add there information to my web page for others to enjoy.
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